Marisa Kimmel, a woman living with alopecia and a positive BRCA1 gene mutation, has undergone a preventative double mastectomy to mitigate her heightened risk of breast cancer. Her journey, which includes her decision to forgo breast reconstruction, has become a public statement on body acceptance and proactive health management, though it has also drawn negative commentary. As stated in a recent tweet by Ian Miles Cheong, "Marisa Kimmel has alopecia and with a positive BRCA had a double mastectomy to avoid breast cancer. You could try to show some empathy."
Kimmel was diagnosed with alopecia, an autoimmune condition causing hair loss, at the age of nine. Years later, after the birth of her son, she discovered she carried the BRCA1 gene mutation, which significantly increases the lifetime risk of developing breast cancer, often by 80% or more. This genetic predisposition prompted her to consider drastic preventative measures.
The BRCA1 gene is a tumor suppressor gene, and a harmful mutation in it impairs the body's ability to repair damaged DNA, leading to a much higher likelihood of cancer development. Preventative bilateral mastectomies have been shown to reduce breast cancer risk by approximately 90-95% in women with BRCA1/2 mutations, making it a critical option for those at high risk.
Kimmel's decision to undergo the mastectomy in February 2021, shortly after breastfeeding her son for the last time, was a deeply personal one aimed at ensuring her long-term health. She chose not to have reconstructive surgery, instead embracing her body as it is, scars and all. This choice aligns with her broader message of body positivity, advocating that "there is no right way to look" and that all "bodies are beautiful and unique."
Despite her courageous stance, Kimmel has faced online harassment. Reports indicate that she has been subjected to vile comments, with some trolls suggesting she "looks like a man" or is a "bad mother" for her choices. However, Kimmel has consistently used her platform to defy these criticisms, sharing images and her story to inspire others and raise awareness about alopecia, genetic mutations, and body acceptance.
Her experience highlights the complex decisions individuals face when managing high genetic cancer risks and the societal pressures surrounding body image. Kimmel's public sharing of her journey contributes to a growing dialogue about preventative healthcare and the importance of empathy and understanding in the face of personal medical choices.